TY - JOUR
T1 - There is always Sorrow
T2 - Risk Factors Faced by Parents of Children Presenting with Severe Intellectual Disabilities
AU - Buthelezi, Sandisiwe
AU - Mawila, Daphney
N1 - Publisher Copyright:
© 2024 Buthelezi and Mawila; Licensee Lifescience Global. This is an open-access article licensed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the work is properly cited.
PY - 2024
Y1 - 2024
N2 - Background: This study investigates the risk factors faced by parents of children with Severe Intellectual Disabilities. Methods: This study used a phenomenological research design within a qualitative research approach. Six parents of children diagnosed with Severe Intellectual Disability at Learners with Special Educational Needs schools were purposively selected to participate in this study. Data were collected through semi-structured interviews and a focus group. Thematic data analysis was used to analyze data. Results: The findings of this study revealed that parents of children with Severe Intellectual Disabilities faced risks that exacerbated negative outcomes. Psychological distress, social exclusion and isolation, financial burdens, and lack of access to formal education were risk factors that hindered their ability to care for and support their children. Conclusions: Based on these findings, the study concluded that parents need access to multidisciplinary teams of healthcare professionals to support them in combatting the risk factors they face.
AB - Background: This study investigates the risk factors faced by parents of children with Severe Intellectual Disabilities. Methods: This study used a phenomenological research design within a qualitative research approach. Six parents of children diagnosed with Severe Intellectual Disability at Learners with Special Educational Needs schools were purposively selected to participate in this study. Data were collected through semi-structured interviews and a focus group. Thematic data analysis was used to analyze data. Results: The findings of this study revealed that parents of children with Severe Intellectual Disabilities faced risks that exacerbated negative outcomes. Psychological distress, social exclusion and isolation, financial burdens, and lack of access to formal education were risk factors that hindered their ability to care for and support their children. Conclusions: Based on these findings, the study concluded that parents need access to multidisciplinary teams of healthcare professionals to support them in combatting the risk factors they face.
KW - Children
KW - parents
KW - risk factors
KW - severe intellectual disability
UR - http://www.scopus.com/inward/record.url?scp=85199392368&partnerID=8YFLogxK
U2 - 10.6000/2292-2598.2024.12.01.2
DO - 10.6000/2292-2598.2024.12.01.2
M3 - Article
AN - SCOPUS:85199392368
SN - 2292-2598
VL - 12
SP - 12
EP - 21
JO - Journal of Intellectual Disability - Diagnosis and Treatment
JF - Journal of Intellectual Disability - Diagnosis and Treatment
IS - 1
ER -
