Psychosocial support for families journeying with developmental coordination disorder

Developmental Coordination Disorder (DCD) is a fairly common neurodevelopmental motor disorder resulting in challenges with the acquisition and execution of motor skills that impact academic productivity, leisure, and play. Although DCD is typically only diagnosed in one member of the family, the multi-domain and lifelong obstacles created by this disorder influence the entire family unit. However, families are seldom offered post-diagnostic support. Therefore, the objective of this study was to identify the support required by families journeying with DCD. To achieve this, a descriptive qualitative study was used to describe the experiences of families. Families (n = 44, from eight countries) completed an online questionnaire and participated in semi-structured interviews (n = 12). The families indicated three key areas of support which they believe would be beneficial. The sharing of information which is easily accessible, understandable, includes practical examples, and location-specific support services was crucial in supporting families. Families stressed the need for informative collaboration with healthcare and education sectors to promote greater awareness so that less parental advocacy on behalf of the patient is required. Since families frequently feel isolated, support in developing connections both online and with other families in similar geographical locations is crucial for sharing ideas and interacting, so that the journey with DCD is not walked alone. These findings indicate a broader and deeper understanding of the psycho-social support required by families with guidelines for psychologists working with DCD individuals.